Exploring Positive and Negative Dimensions of ASD
Funded by: NIMH
Principal Investigator: Dr. Jennifer Foss-Feig (Mt Sinai); Co-Investigator: Carla Mazefsky (University of Pittsburgh)
Status: Active, but enrollment is closed
What is the study about?
- This study will develop and validate a dimensional observer-report measure of ASD. This assessment study is designed to create a measure of autism symptoms for parents of children ages 3-11.
- This study is important because current measures of core ASD symptoms do not adequately capture heterogeneity and variability. This new measure will improve our measurement of core autism symptoms. We hope that this measure will be used to evaluate new interventions and clinical services for people on the autism spectrum.
What did we learn from this study?
- Results pending
Will my information be kept private?
The data we collect from study participants are secure and private. This means that we do not have your name written anywhere on the data. We use a random number. So, instead of having data, for example, that is called “John Smith interview”, it might be called “#101 interview”.
- The file that links your name to the data is stored separately and not shared.
- We do not collect data from your medical records.
- We do not have access to your medical records.
- We are not putting data or diagnoses into your medical records.
- Your name, address, and other information that can identify who you is not shared with the government or any other funder or collaborator.
How do I find out more?
- To learn more about EXPAND, please email the current study coordinator, Kara Duman at dumankl@upmc.edu .