EDI-FNIRS Research Study
Funded by National Institute of Health
Principal Investigator: Carla Mazefsky
Status: Active and enrolling
What is the study about?
The purpose of this research study is to understand emotion management in children with autism by measuring brain activity and having a parent report on their child’s emotional behavior via the Emotion Dysregulation Inventory. Our goal is to understand how brain and behavior relate. The child will complete some flexibility and frustration tasks on a computer while wearing a cap that measures blood flow in the brain. Parents will be asked to complete online questionnaires about their child as well. This process is called the Functional Near-Infrared Spectroscopy (fNIRS). Understanding how children’s brains react to frustration-inducing and cognitive flexibility tasks will help us to better understand emotional reactions and create new opportunities for prevention and treatment efforts to support healthy emotional development.
This research is looking at children with autism spectrum disorder between the ages of 4 to 8 years old.
- Will my information be kept private?
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The data we collect from study participants are secure and private. This means that we do not have your name written anywhere on the data. We use a random number. So, instead of having data, for example, that is called “John Smith interview”, it might be called “#101 interview”.
The file that links your name to the data is stored separately and not shared.
We do not collect data from your medical records.
We do not have access to your medical records.
We are not putting data or diagnoses into your medical records.
Your name, address, and other information that can identify who you is not shared with the government or any other funder or collaborator.
To learn more about joining this study, email autismrecruiter@upmc.edu