Funded by: National Institutes of Health (NIH) as an Autism Center of Excellence (ACE)
Principal Investigator: Carla Mazefsky, PhD & Caitlin Conner, PhD (University of Pittsburgh)
Status: No longer enrolling
What is the study about?
The purpose of this study is to develop a new measure of suicidality called the Autism Suicidality Inventory (ASI). The ASI is a survey that measures suicidality in autistic adolescents and adults. The ASI was developed in partnership with autistic teens and adults. The availability of such a measure is key to inform intervention development to improve safety and quality of life. We hope to learn information that can be used to support mental health for autistic people.
- Will my information be kept private?
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The data we collect from study participants are secure and private. This means that we do not have your name written anywhere on the data. We use a random number. So, instead of having data, for example, that is called “John Smith interview”, it might be called “#101 interview”. The file that links your name to the data is stored separately and not shared.
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Your name, address, and other information that can identify who you are is not shared with the government or any other funder or collaborator.
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We are not putting data or diagnoses into your medical records.
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We do not have access to your medical records.
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We do not collect data from your medical records.
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